Resources

When I was diagnosed with Crohn’s 31 years ago I did absolutely no research on the subject. I know that my mother did and I am glad that she kept what she found from me, I had no idea of the severity of the disease. Looking back I’m not sure if my ignorance was the best way to deal with it; would it have made any difference if I had known all the possibilities the disease could bring, I’m really not sure. I did not meet anyone with Crohn’s until I had it for 7 years when I became a patient at St Marks Hospital, it was a harsh reality check.

I have done more research in the last few weeks than I have ever done but better late than ever!! As with everything there is so much information out there that I thought it may be useful to put together some information for those that are interested.

Below are useful links to Crohn’s and the main procedures I have had carried out:

Crohn’s Disease:
https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/crohns-disease

Subtotal colectomy:
http://www.birminghambowelclinic.co.uk/treatments-sub-total-colectomy/

Ileocaecal anastomosis:
https://www.ibdrelief.com/learn/treatment/surgery/ileocaecal-resection-surgery-for-crohns-disease

Definition of a stoma:
http://www.ostomylifestyle.org/content/what-stoma/
http://www.stomawise.co.uk/types-of-stoma/overview

Types of ileostomy:
http://www.stomawise.co.uk/types-of-stoma/ileostomy

Fistula:
https://mycolonclinic.com/Rectal-Disorders/Recto-Vaginal-Fistula

Below are links links to further reading and support:
https://www.crohnsandcolitis.org.uk/
http://stomawise.co.uk/
http://ostomylifestyle.org/

Below are links to Ostomy suppliers and support:
http://dansac.com/
http://coloplast.co.uk/